Soleno Therapeutics to present new long-term DCCR fata at largest-ever Prader-Willi Syndrome Conference
Soleno Therapeutics, Inc, a biopharmaceutical company developing novel therapeutics for the treatment of rare diseases, today announced one oral and six poster presentations at the 2025 United In Hope: International Prader-Willi Syndrome Conference, which will be held June 24-28, 2025, in Phoenix, AZ.
The conference represents a unique collaboration between the Prader-Willi Syndrome Association | USA (PWSA | USA), the Foundation for Prader-Willi Research (FPWR), and the International Prader-Willi Syndrome Organisation (IPWSO), and is anticipated to be the largest conference focused on Prader-Willi syndrome (PWS) ever held.
“At Soleno, we are reminded every day of the vital role that data, science, and advocacy play in driving meaningful progress for rare disease communities. In this 50th anniversary year of the founding of the first PWS group, PWSA | USA, we are particularly reminded of this progress,” said Dr. Anish Bhatnagar, Chief Executive Officer and Chairman of the Board of Soleno Therapeutics. “In a condition like PWS, where the lived experience of individuals with PWS and their families is essential to understanding the full impact of the disease, our partnership with advocacy groups is critical. We are honored to have a strong presence at this year’s International PWS Conference and remain deeply committed to advancing research, listening to the community, and working together to improve the lives of those impacted by PWS.”
Presentation details:
Format: oral presentation
Title: Long-term Efficacy Results of Diazoxide Choline Extended-Release (DCCR) Tablets in Participants with Prader-Willi Syndrome from the Completed C601 (DESTINY PWS) and C602 Open Label Extension (OLE) Studies
Presenter: Evelien Gevers MD, PhD, Consultant, Queen Mary University of London, Barts and The London Medical School, William Harvey Research Institute, Centre for Endocrinology, London, UK, Barts Health NHS Trust Royal London Hospital, London UK
Date/time: Thursday, June 26, 11:00 MST
Format: poster presentations
Title: Swallowability and Dosing Compliance of Diazoxide Choline Extended-Release (DCCR) Tablets in Patients with Prader-Willi Syndrome
Presenter: Neil Cowen, PhD, MBA, Senior Vice President, Drug Development, Soleno Therapeutics
Date/time: Wednesday, June 25, 4:00-6:00 MST
Title: Diazoxide Choline Extended-Release (DCCR) Tablets Significantly Reduce Hyperphagia in Patients with PWS Who Are Managed with Strict Food Controls
Presenter: Evelien Gevers MD, PhD, Consultant, Queen Mary University of London, Barts and The London Medical School, William Harvey Research Institute, Centre for Endocrinology, London, UK, Barts Health NHS Trust Royal London Hospital, London UK
Date/time: Wednesday, June 25, 4:00-6:00 MST
Title: The Emotional Impact of Hyperphagia: Insights from the PWS Community
Presenter: Maria Picone, Founder and CEO, TREND Community
Date/time: Wednesday, June 25, 4:00-6:00 MST
Title: Safety and Efficacy of Diazoxide Choline Extended-Release (DCCR) Tablets in Patients with PWS who have Pre-Diabetes or Diabetes
Presenter: Jennifer Miller, MD, Professor of Pediatric Endocrinology, the University of Florida, Gainesville
Date/time: Wednesday, June 25, 4:00-6:00 MST
Title: Comparison of Changes in Fat Mass in Participants with PWS Treated with Diazoxide Choline Extended-Release (DCCR) Tablets to Those in the NIH Natural History Study
Presenter: Jennifer Miller, MD, Professor of Pediatric Endocrinology, the University of Florida, Gainesville
Date/time: Wednesday, June 25, 4:00-6:00 MST
Title: Relaxation of Food Control Parameters Based on Improvements in the Food Safe Zone Questionnaire Occurs with Reduction of Hyperphagia in Clinical Trials of Diazoxide Choline Extended-Release (DCCR) Tablets in Participants with Prader-Willi Syndrome
Presenter: Evelien Gevers MD, PhD, Consultant, Queen Mary University of London, Barts and The London Medical School, William Harvey Research Institute, Centre for Endocrinology, London, UK, Barts Health NHS Trust Royal London Hospital, London UK
Date/time: Wednesday, June 25, 4:00-6:00 MST
For additional information about the conference, please see: https://www.pwsausa.org/2025-united-in-hope-conference/.
